Hello everyone! I just recently set up a new group, for DEAF - TopicsExpress

Hello everyone! I just recently set up a new group, for DEAF or HARD of HEARING people with Chiari, Syrinx, and EDS. If you are deaf or HoH, or know anyone who is.. please join this group. I believe this will be an amazing opportunity for all of us who are deaf and have this disease. We could meet new people! For an example, I met a wonderful deaf woman who also has Chiari through a mutual friend. It was a SHOCK to me, because it felt like I was the ONLY one. I do not want anyone else to feel the same way I felt for a long time. Please share this with anyone you know and have them join! Also, if you have any recommendation on how I could find more deaf/HoH people with Chiari, please let me know so I can either share this group with them or invite them to the group. This group I made up is a closed group, that way our conversations in the group are private and you guys can feel comfortable talking about anything! We are HERE for eachother! I have attached the group in this post, so just click on that and it will get you to the group Chiari, Syringomyelia, & Chiari with EDS Deaf Support Group THANK YOU and I hope to see you guys in the group! :)

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