Hello everyone its day 3 of Anthonys journal and it was 7 weeks ago to the day we found out Anthony had krabbe disease. I cannot believe how much everyone has accomplished in that amount of time. Starting with Harry potter in London, The 17 mile AJ walk, Anthonys christening, various family photo shoots, various hospital and home appointments, changing meds, the kids for kids show at the guild hall, the fashion show, Blackpool yesterday a new car and pram for Anthony and Alton towers this weekend, with much more to come. As for today, we had not such a great start, tbh honest Anthony hasnt really had a good day all round, he has spend nearly all of the day crying and been very irritable and when not crying he has slept. Im sure its not all to do with his condition and partly heat and other reasons babies cry but its hard when you have a day like this. Right now he is fast asleep and happy which is really good, he was sick a few times and he did cry this time when I gave him a bath but hopefully tomorrow will be a better day for him. Thank you all for reading and we will get back to you tomorrow from Stoke as we are staying over. Goodnight god bless x x
Posted on: Fri, 25 Jul 2014 22:28:31 +0000
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