Heres a great memory. We were hoping to get specialized radiation for Ila for the tumor that she had in her sphenoid sinus cavity in her head. We didnt want to chance radiating her brain in any way if we didnt have to. There was this new Proton Beam Radiation out at the time. Only 2 hospitals in the country had the machine. One was in Texas, the other was Boston. We had to apply to get her approved with only limited spots available for treatment. She ended up being denied. I couldnt believe it. I didnt understand. She was only a baby, just barely 2 years old. Why would they say no? Why would they send her off to chance brain damage from radiation?? I asked so many times why and they just told me she was denied. They never seemed to want to explain why. I was getting frustrated and after a couple weeks and my continued asking, I was finally told why. I then regretted wanting to know. Ila Jean, my little baby girl, who just turned 2, was denied because her chances of surviving her cancer were not high enough. Basically they werent going to waste a spot on my baby because she would most likely die anyway. Thats what I heard. That was an awful thing to have to accept. Even worse was to then have to hold you baby in your arms twice a day every day for 7 days as she was sedated, then lay her limp body down on the table so they could radiate her head. 46 children will start going through a multitude of tests and scans after being diagnosed with cancer today. 7 children will never have to lay still for another scan again after dying today from cancer. In memory of Sean, Sal, Connor, Anna, Erick, Christi and Cole.
Posted on: Sat, 13 Sep 2014 00:56:07 +0000
Trending Topics
Recently Viewed Topics
© 2015