Hey guys, just wanted to share this video with u all. A couple of months ago Alyssa was denied funding for a manual wheelchair from the Shane Warne Foundation after waiting 6 months for an answer. She needs a manual chair as the power chair she has is not always working, going away to be serviced or is not approriate to go to certain places due to its heaviness pushing it around and now with her Madelung Syndrome that has been diagnosed, some days she cant drive it at all. Well when we were out and about last weekend we discovered a very scary problem. Her manual chair that she has outgrown anyway and which bounces her alot is actually very close to the bolt snapping completely. The thought of this chair snapping with Alyssa in it freaks me out. Since we got rejected for the funding we feel like things are taking forever. No other funding has been sourced yet. We have waited 4 months and still have not heard anything from her case workers. This unfortunately is the reality with having a child with special needs. Everything is a wait and a battle. Its sad that because Alyssa has a rare illness, things are put on the backburner and not a priority. Watch this video and im sure you will feel as sad as I do that my precious child is being transported in this and people are taking their time to fix the problem :-(
Posted on: Wed, 22 Oct 2014 09:15:14 +0000