Hi all, the last photos were taken today at the drs office. You can see Eben did not like the ECG.. Sho, lots of news. This dr is a cardiologist and the only pulmonary hypertension specialist in SA and he was shocked by Ebens pressures, it picked up to 230 when he cried (should not be higher than 30) and once again confirmed that he thinks Eben is a miracle. He wants to increase his dosage still on medication and write a big motivation for the medical aid for medication approval, portable oxygen machine, CT scan, and an operation to put a peg/tube in his stomach to pump nutrients into his tummy at night to help him with his growth as his lungs are in a bad state and need more capacity. So we need to put Eben back on 24/7 oxygen too. That has a lot of logistical implications.. But most importantly we are excited about possible change because Eben is in a severe state, the Dr repeated it a couple of times. I really believe God led us to this Dr so we are very hopeful and positive about new outcomes even though some of the changes are daunting and scary. There is hope!!
Posted on: Fri, 25 Jul 2014 13:52:15 +0000
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