How would you like to help or get involved in some way with - TopicsExpress



          

How would you like to help or get involved in some way with Friends of Ichthyosis? If you have any skills, ideas for the group whether it be general or fundraising then please do get in touch. We also want to hear from anyone with a genuine interest in the condition and the group, whether you are affected by the condition or not. You know what they say there is strength in number so lets join together, we now have 615 likes on this page, but lets work together to get the name Ichthyosis out there, raise awareness and raise the importance of groups such as Friends of Ichthyosis. We need YOU! Please message or comment here to show your interest. And please share with your friends. That in itself will help us tremendously. There are still lots of families out there who are suffering in silence and we need to let them know were here for them should they need us :)
Posted on: Sun, 25 Jan 2015 13:37:50 +0000

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