I come with news I never wanted to share, but new in the past few days that it was news that was most likely coming. Braydens MRI was not good. He had new tumors in his brain and some that had gotten bigger. There are two lesions on his spine, one growing from the outside in and one growing from the inside out. I have never been so scared, im so scared of the pain this may cause him. I am so scared of everything. Our really only option is to take him home on hospice and try to control his pain. I am having a very hard time with this. My heart is broken. If I think about the right thing to do here, this felt like the right thing to do for Brayden. I cant keep him here any longer, just so that he suffers longer. I love him more than I will ever be able to express. For a long long time, he has been the center of my world. He is my little heart and I just feel so broken. I would do anything to keep him here with me. I hate medulloblastoma, its the one enemy I could never defeat. I will update more later. I just wanted you all to know whats going on. We will be moving in with my Mom in Buford, people have sent me messages asking for our address, It is: 5825 Austin Garner Road Sugar Hill, Ga 30518 My cousin started a fund for end of life care for Brayden, and funeral expenses, I will post the link. I cant believe I am talking about end of life care for my 7 year old. No parent should have to sign a DNR for their child. I dont know how I am ever going to be ok again. Here is the link to the Donation page. Thank you for everything you all have done, for being there for us and praying for us, especially for Brayden. Please pray he remains out of pain. https://everribbon/ribbon/view/18074
Posted on: Tue, 29 Jul 2014 23:11:33 +0000