I dont understand this Silent for 65 thing. Makes no sense to me. - TopicsExpress



          

I dont understand this Silent for 65 thing. Makes no sense to me. Youre gonna go silent on social media alone (alone as in just social media and not take a vow of all around silence) .. For what? Shouldnt it have been the opposite? 65 hours of nothing but borderline spamming newsfeeds, twitter feeds and dashboards with information on Cf? Statistics, races, walks, general info and places to donate? As if people dont know enough about the disease already now the cf community - or part of it anyway - is going to just fall silent? And whats the point of that? I was told it was so people would be provoked into asking, Hey. Why havent you posted the last few days? which would then give the opportunity to explain Cystic Fibrosis and blahblahblah. Well if that isnt the most self absorbed, self inflating, stupidest logic Ive ever heard in my entire life. You honestly think that you are that important to people and that noticeable amongst peoples 300-tens of thousands of friends on their friend lists that theyre just going to notice right away, in less than 3 days, that youre all of a sudden not posting? And are actually going to take it upon themselves to write you a message on Facebook or DM you on whatever other social media network? Talk about having a big head, bigger ego and thinking youre more important than you really are. Most people dont even go on Facebook daily so for them to notice that you and a few of your friends, who typically post about nonsense anyway, have fallen silent is highly unlikely. However if they came back and saw that you and all your stupid little friends actually posted a TON of meaningful posts, providing them with answers about what CF is, directed them in how to make a donation and listed information about where they can partake in walks, 5/10ks, etc etc.. Maybe then theyd be inclined to send a message saying, Hey. How else can I help? But to think that falling silent for a period of time that less than 3 days (and yes I understand the significance in the 65...but does anybody else without cf?) and only on social media and to not have a sort of re-entry plan in motion to give some sort of a big, Hey were back!!! With more info than ever!! type of statement... Is just assinine. Straight up. Its stupid. The ALS Ice Bucket Challenge... Did that go viral because it was done by one or a few people? Or did it go viral because it spread like WILDFIRE and everybody and their aunts (literally) were doing it? Jesus people are still talking about it and I bet come middle of winter itll start up again since its colder and the stakes will be raised. As Ive said before. More thought needs to be put into these things. They need to be discussed in open forums. A group needs to be made for strictly these topics and it needs not to be corrupted by idiots and fools who troll and spam the page and start fights and act like immature little pussies. People need to stop listening to and following these goons with a semi-good, half assed, thrown together in 15 second plan and acting like its going to be a new revolution. People need to stop following the Morgans, Bryces, Sophias and Corys of this sub-cultur and realize them for what they are. They dont have your best interest at heart, they have their own popularity and self image at heart. They just want to be at the root of all the plans and groundwork to take credit in case the idea happens to take off. And they say the things they do and do the things they do to gain followers and gain the trust of those followers to widen their reach and voice to make it seem as if theyre more important and influential than they really are. Im sick of it. Im sick of the false prophets theyre made out to be. Im sick of people acting as if theyre so great when anyone with a relatively decent education should be able to see through the facade. Im sick of them acting as if theyre going to help the cf community when theyre only helping themselves and chaining out one failed bad idea after another. The time for change is now. Ive been racking my brain for months on how to come up with a new, original and EFFECTIVE method to bring awareness to Custic Fibrosis and the damage it causes, the lives it destroys and the people it takes from us. No silly ploys. No popularity contests. No bullshit. Im getting close. Ive got a lot of great ideas and soon Im going to start reaching out to people for their help. Im not saying I want to be a or the poster child for cf or that I myself want the popularity and recognition. Its not about that. Its most likely too late for me to be saved ... But its not too late for the baby that was just diagnosed.. Or the 10 year old boy who just learned the definition of, Terminal. Thats who Im doing this for. THATS who I think of when I get so angry and make these long rants of a status and call people out on their shit. Because its not about us. Its about them. Thats all I have to say for now.
Posted on: Wed, 15 Oct 2014 12:57:33 +0000

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