I finally have closure and an update. Finally. Officially re: the - TopicsExpress

I finally have closure and an update. Finally. Officially re: the CED trial we were navigating. An honest answer, the one we have been waiting for was received- Lilys quality of life, with her amazing spirit and strong physical form as she shines now, would not benefit whatsoever with the trial and within its parameters; as it stands now. The timeline is just not possible.Could something change in the future? Yes. Perhaps. But *not*NOW*. And thats what we needed to know and hear. Weve already set up our next option. Thank you so much for advocating #teamlilylarue. Your roar was heard. I am so grateful to you all. Its so freeing to finally have this weight off. I can now, with clear head and purpose, navigate our new direction.

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