I had to back out of two much-anticipated Christmas parties this - TopicsExpress



          

I had to back out of two much-anticipated Christmas parties this weekend. I was out every day this week, and because of my health issues (now officially diagnosed as mito), it caught up with me. My blood sugar dropped to 40 last night, which kicked in a nasty headache, and then rose to 400 this morning in a rebound effect. My bladder spasms flared, and theyre not a kind of pain I can ignore because theyre so sudden, so I cant help but react. The thing is that these spasms are a sign that my faulty autonomic nervous system is more out of whack than usual, and pushing through fatigue will only make it worse. Worse can become pretty dangerous, and when you lose autonomic function, the loss tends to be unrecoverable. I take fatigue seriously. I listen to my body. The world has to stop until I get rested. I drugged myself through them yesterday, but I didnt want to load up again. I mostly slept, got up for a bit, and now Im back in bed with a movie, and the best part, a fuzzy kitty (who is nearly invisible with all the covers and pillows!). I love, love, love Christmas! And I love my community, my family at the autism center even more. Of course I want to celebrate this beautiful season with them, and it would be easy to get really upset about missing out. But rather than get stuck there... I think about everything I did do this week. I went to the craft store and got all ready for gift-making, and I didnt even crash! I cleaned up my apartment, had a friend over, worked on my gifts, worked two days, did a bit of shopping on Main St. in town (which, I rarely feel up to walking up and down the street, so this was a first). I met new people in my community and got to chat with people popping in to the center. One mom has a 6yo boy who had come in, and I showed him the iPad at the center that I loaded up with a hundred autism apps. She was alone this time, but I knew some of my birthday balloons were still bobbing around the center, so I snatched one and wrote Parents in Toto on it and told her to take it to him. I got to have chocolate sent to a best friend in need, and I nabbed a 41 (!!) Olaf balloon for a kiddo friend of mine who has been pretty sick. I sent kitty Christmas cards, had lovely talks with my beloved big sister, and really, what a week! Instead of getting bummed out about what Ive missed, I think its much better to focus on the many good things this week brought. I do wish the families at our center a Merry, Merry Christmas... But I wont be too sad Im in a cozy bed with a movie and my Goose.
Posted on: Sat, 20 Dec 2014 22:19:34 +0000

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