I just wanted to say a very heart felt thank you to all of you who - TopicsExpress

I just wanted to say a very heart felt thank you to all of you who have got in touch after seeing the short film about Skye. Your words of support have been so touching for us. A very special thank you to all who have SHARED the story. Right now raising awareness about this rare condition is very important to us. Rett Syndrome is very realistically the first condition of its type that could be cured within a reasonable time frame and there is real and legitimate hope for families like ours. On a final note if anyone does not wish to see my posts in relation to Skye & Rett Syndrome then please simply block me or remove me as a friend. Over the coming days (in moderation) I will continue to promote Rett Awareness and I do not wish to upset anyone as a consequence. Again thank you. Wayne X https://youtube/watch?v=Dd8_nlipRik

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