I know many think I display my life too much on Facebook. If you - TopicsExpress



          

I know many think I display my life too much on Facebook. If you only knew how much I actually hold back. I am an advocate on Lupus research and have used my own experiences in a way to spread the awareness. It was never to gain a pity party or have people feel sorry for me. It was simply me creating a way to cope by hoping that my own daughter and other children will never have to suffer such a deliberating disease as me. I am being quite frank for a moment with each of you, and I am truly wanting to express that when someone has a chronic illness depression is a big factor we deal with in our every day lives due to feeling like a constant burden on our families and friends. It is not like cancer or AIDS when you truly know a definite at one point. A person with Lupus is on a never-ending roller-coaster and no stop is alike with different ailments attacking at any given moment. I have pushed so many very important people in my life away, and I have been difficult to live with because when someone is in such pain and when depression hits we tend to have no patience, become controlling because of lack of losing our control of our bodies and life, and when our minds become confused/ forgetful due to our brains not processing properly it results in speaking wrong or making mistakes. I have faced each of these problems more times than I wish to admit. My point in this letter today is to apologize, but I have learned through the years I am so very strong and have fought and survived many battles with Lupus and in my life. I have never given up; however, I will admit there have been times wishing to be dead was an answer that made sense not for me but to release my family and friends from my illness. This has been my battle since March of 2000, and I am still here baby! Geeze, my heart stopped November 2013 and it did not take me...why? I am here because my job is not done, my life is beautiful, my family and friends are awesome, and I am here because I want to be here. As I learned about Robin Williams having the beginning stages of Parkinsons and committing suicide, it caused me to ponder on my own life. I understand him. I understand! However, to all of you...please do not give up when facing a challenge either it be an illness, financial setback, domestic violence, abuse, losing a job, divorce, or depression. Never Give Up! Use your pain as your weapon to survive, stand up tall, and make a difference for the positive in someones life...Dont give up you are not beaten yet...Dont give up, I know you can make it through. I promise! I promise to my family and friends- I will NOT give up!
Posted on: Fri, 15 Aug 2014 20:22:49 +0000

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