I want to be like Grace Anna when I grow up! Her story: Now the history of our sweet Grace Anna. Grace has a rare form of dwarfism called Conradi Hunermann syndrome. Doctors tried to get us to abort her over five different times. It never was an option for us. She has overcome many obstacles including being born blind due to cataracts, severe kyphosis and scoliosis of the spine, and other health issues. SHe has many other health issues she deals with daily. We almost lost her in 2012 due to complications after surgery. We travel to other states for her health care as far as Maryland as well as in our home state of Kentucky. With all of that said, she is never in a bad mood. She is always singing and happy. SHe is super smart and loves to entertain. She is a blessing each and every day. God truly gave us a little girl that touches our souls. She is very close to her brother and he adores her. They have a very special bond, its just amazes me. She started singing at 16 months, and absolutely loves to sing, sing, sing. Thank you all for the many messages and words of encouragement. You will never know how the support and prayers from around the world keeps our spirits high. We feel all the love sent our way and we are very, very grateful. God bless you all. She is also has a youtube page at youtube/channel/UCJteqa-uYVpXer-BE5_LSWQ
Posted on: Sat, 02 Aug 2014 02:02:21 +0000
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