I want you to know there is hope. Do you know how/why HD/JHD affects the human body the way it does? If not, let me explain. There is a mutated chromosome on a strand of DNA. That mutated chromosome acts like a magnet for certain proteins in the body. Those accumulated clumps (or tails) of proteins block brain receptors. The blocked receptors are responsible for all symptoms of JHD & HD. Are you still with me? Does that make sense? Ok, assuming you totally get that, now you need to know this: there is a drug that has been discovered to break up these protein clots and help receptors ignore their presence. The company that makes this drug has given itself a 1 year deadline to begin human trials. If it works the way it is supposed to work, HD & JHD symptoms will be greatly minimized and quality of life will be restored. I know one year seems like forever, but if it works, HD & JHD will finally have a real chance at being treated. So, yeah, HD & JHD totally suck ass, Im right there with you on that one. But, when you feel hopeless, remember that this drug has a real chance at giving your loved one back so much of what they have lost. It can not bring anyone back that has already been lost but it might be able to save your loved one who is suffering now or is at-risk of inheriting this genetic disease that attacks families. This is why knowledge is power. I hate HD & JHD as much as the next person and we ARE going to defeat it. I do not make this claim lightly, I do not believe in fairy tales - I believe in science. This is what I learned at the HDSA convention this year. It was worth every penny I spent to get there so I could bring it back & share it with you. The drug is called Laquidimod and the pharmaceutical company is called TEVA. mdsabstracts/abstract.asp?MeetingID=801&id=111560
Posted on: Thu, 26 Jun 2014 01:16:55 +0000
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