I was going every Friday for my intestines to be cleaned out, but with the holidays and everything, it is not able to occur anymore. The doctors are very fearful of what is going to happen now because I can’t move anything through and these surgeries on Friday are the only things that “help.” Not only does it help move things along so that it doesn’t remain in my GI tract and it helps prevent the sepsis from occurring and my intestines from rupturing, but it also makes me feel better. I used to really look forward to this day because of how much better I felt after the procedure but now since it is the holidays nad everything… the doctor has no time to do it. So I have really been suffering and there is nothing the doctor really can do about it. He is trying his best though to fit me into the schedule or to have one of his partners do the procedures on me. Hopefully something will be able to work out because I won’t make it without it. In addition, I have to make an appointment to see the cardiologist ASAP. My heart is not doing well and I am gurgling like crazy. We know that I am aspirating because of the severe gastroparesis and that my heart is greatly being affected by the autonomic dysfunction, but the doctors want me to see the cardiologist ASAP because things are getting so bad. Even though we are scheduled to have the major surgeries in Cleveland in February, we are supposed to be headed to Cleveland Clinic for about a week in January (January 6th -9th) to finalize everything and to see specific specialists. One particular specialist that we are supposed to see is the cardiologist who is supposed to be very well known. He is listed under the 50 best doctors that Cleveland Clinic ever had and he was also trained under the legendary doctor named Sones. Sones was a great cardiologist that discovered a way to form a road map of the heart for medicine and surgery. He injected dye into the coronary arteries, which allowed the arteries to show up on X-rays and gave cardiologists the opportunity to identify obstructions in blood circulation. Sones’ innovation made possible, for the first time, accurate diagnosis of coronary disease and set the stage for the modern era of cardiology and cardiac surgery. So you can just imagine how great a doctor this doctor I am seeing is. However, I still need a doctor in New York in case something happens in an emergency and with everything happening, my doctor literally told me today that he wants me calling the new cardiologist first thing Monday morning and making an appointment. I just need help and need help fast. We always knew that I had an intussusception in my colon, which is a twist that is life-threatening if not treated. However, thankfully (if you want to say it like that) my colon was so dilated and floppy that I was able to live with it until now. However, it has gotten so bad now that I have to get it taken out right now. It is now in an emergency state that I have to get it taken out NOW! The doctors are worried that the longer we wait the worse things are getting. They are worried that more and more organs are being affected and are going to need to have surgery on them and/or be transplanted. So it is really necessary to get this surgery done ASAP. In the meantime, I have also been getting my usual ketamine treatments. Of course the best thing would be if I could get to Mexico and get the radical ketamine coma that I really desperately need, which would ‘cure’ my entire neurological disease and autonomic dysfunction, but it costs over $100,000, which is something we definitely don’t have. I would do anything to be able to go to Mexico to have that radical ketamine coma. I truly believe that would be the answer to all this. But unfortunately, it costs too much money and we can’t afford it. So in the meantime, I have been undergoing the ketamine comas here in New York. Of course they are no where in comparison to the one that I would be getting in Mexico because the one in Mexico is one that I would be given so much ketamine that I would literally be on life-support and totally dependent on machines and ventilators. The amount of ketamine to do that is not FDA approved and therefore, it cannot be performed in the United States. During this procedure, patients are put into a ketamine-induced coma-- essentially shutting the body down & giving it time to reset the nerves, brain and spinal cord. Patients are supported by a ventilator and monitored in the ICU. For many of the patients that underwent this treatment, the treatment has been miraculous. I would be the 38th patient to undergo it. But since I can’t get it currently, I have to rely on my ketamine comas here that is much less than that. I wish I could live in those ketamine treatments because I can’t take this suffering anymore. At least when I am in the ketamine comas… I am not feeling any suffering. It is my “vacation” away from this illness and horrendous life until I wake up. I have been deteriorating and worsening so much lately that medications have not been helping me. Therefore, the doctor has raised the ketamine done another 50 mg. Well… I guess that takes care of everything for right now. Just gotta hang in there until I get the surgeries. Just gotta pray that I get the necessary funds so that I can get the surgeries. I am hoping also that we have enough money to even go for the week to Cleveland to meet with the doctors that I need to meet with. We are scheduled to leave February 1st for Cleveland and have heart surgery the 2nd. Then I will have my colon removed on the 18th. Depending on how that goes, it will determine how urgently the multivisceral transplant will have to follow. I will have to be there at least 6 weeks at this time, which also happens to be when my birthday is. What a way to celebrate a birthday! But I don’t care as long as I get better!! My brother surprised me today with a bear and a big box of chocolate truffles. He works as a social worker and one of the rehab/nursing homes gave him some stuff… so of course he gave it to me. The chocolate truffles look so yummy. Maybe one day I will be able to enjoy them. Well… have a happy holiday and please remember my website. Please remember to pray for me and pass my website along. Remember… even a $1 can make the hugest difference in my life!! If you have any other ideas how to raise money, please let me know… all ideas are greatly appreciated. Please email me at Femirsky@gmail. Donations are very much appreciated at gofundme/FallonMirsky. Happy Chanukah, Merry Christmas, Happy Kwanzaa, Happy New Year. - Fallon
Posted on: Sat, 20 Dec 2014 07:28:36 +0000
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