If you know me at all, you know that my girls are my world. Jay & I were married 8 years before I got pregnant with Ky. For a long time, I thought Id never be a Mom, and I worried that if I did get to be a Mom, I wouldnt be a good one. When Ky was born, all of that went away, and I knew she was someone Id adore till the day I die. Then Kinslee came along about 17 months after Kylee & I have to admit that my pregnancy with her was much different than Kys. Emotionally, anyway. I felt the same love for her that I felt with Ky, but I was so scared for her. I felt so guilty, like I had somehow done something to cause her problems. We found out that she had a heart defect that would require open heart surgery to repair & that she had fluid on both sides of her brain. Both of those are markers that indicate the child probably has Downs. The only way wed know for sure before she was born, was to have amnio, but that ran the risk of causing a miscarriage. We werent willing to risk it. We already loved her & wanted her, no matter what. She ended up having Downs, had open heart surgery when she was 6 months old, but she didnt have to have shunts for the hydracephalus because there were no blockages, thank God. Last week, when little Annie passed away after being denied a life saving heart transplant because she had Downs, it reinforced my gratefulness that Kinslee wasnt in that position. But she could have been. It could be any of our kids with special needs. The medical community has deemed that patients with any disability do not have the quality of life that warrants them being eligible for organ transplants. Really? It infuriates me that they think they have the right to decide whose quality of life is more important, more deserving of possible life saving organ transplants. Outrageous! Every life is precious, regardless of disability, gender, race, etc. Every life! Annie touched so many hearts in her 2 short years on this earth. I pray her passing helps bring about a change in this ridiculous law. She deserved to live, to grow up, to laugh & play. We need to do all we can to ensure that no family goes thru what Annies went thru. That no child goes thru everything Annie went thru. I pray that something positive comes from this & that little Annie continues touching hearts from Heaven. ♥
Posted on: Wed, 25 Jun 2014 03:20:37 +0000
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