Im about to mope. I understand Gods timing is perfect and there are reasons and plans for all things but I just cannot help but get discouraged. I went all the way into Houston today to find Out that The therapy for Jenna was partially denied until I appeal it. She sent me home with a teether? I cannot appeal without a real diagnosis. I cannot get a diagnosis without this thorough procedure between two specialists. The ENTs scheduler finally called me back and after ten days of planning she said We are available nov 14th. If Pulmonary is.... First off...that is a month away! Second, why after ten days do yall not have a plan with Pulmonary? Third, thats the ONE day I finally got in with the SSI office. Its been 5months since we learned Jenna aspirates and basically 16m (her lifetime) since The FTT diagnosis. At this point it will be the holidays before we get a plan together and the new Year Before we Get Answers or any help with the extra costs her new care plan entails. It costs a lot To go downtown and really get no further. We have been so blessed financially and I am so grateful for that! I just want someone to know something more than me! On top of my crummy news today, I am getting sick. I cannot get sick! Also, Peyton has had complete emotional meltdowns all week. We Think Shes struggling with jealousy over Jenna. I feel kinda defeated even though I know Im not in Christ! Im sorry for the whining. Im about done now. God is still on his throne and his ways are perfect. Please just pray for us. Thanks friends. #thanksforlistening
Posted on: Fri, 17 Oct 2014 00:59:56 +0000
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