Im sorry, Ive been terrible at updating this page because I have - TopicsExpress

Im sorry, Ive been terrible at updating this page because I have just been posting everything on my personal page. Heres the latest... Please watch this video to learn more about Nolans disease. Andy and I have been throwing around ideas about Nolans treatment since he was diagnosed in November, and after our meeting last night, we decided that we will be transferring Nolans care to Childrens Hospital Colorado. Unfortunately, Childrens Hospital of Wisconsin doesnt have the knowledge to care for Nolan, and the wait to get into Cincinnati Childrens Hospital would be about 6 months. Nolan doesnt have 6 months to wait... The pain he is experiencing is increasing everyday while his weight and food intake is drastically decreasing. Childrens Hospital Colorado is one of a handful of hospitals in the US that has a center dedicated to EoE. We feel confident that they can handle Nolans case and that they will be able to find a treatment plan that works for him. Please pray for us as we continue on this journey!

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