Im too sick and tired for this: Its one thing to not know me or - TopicsExpress



          

Im too sick and tired for this: Its one thing to not know me or my case and to wonder if Im taking my medication properly. Fine. Ask me once. Ill tell you what Ive told every.single.doctor.ever. I take it as prescribed, not near food, and not during a time when it can mess with absorption of other meds I need, like iron. Hell, they just ran tests here that SHOW I dont absorb certain things, including Vitamin D (my level was 4 - it should be 40). Theres clear evidence of malabsorption due to Crohns. I cant fake a low level of oxygen. Its not possible. So to have ONE endo come in and undermine my Hopkins endo and every other doctor before her, question my integrity, and tell me that I must be absorbing something or Id be dead already is horrible. The reason Im NOT dead is because Im always in the hospital - always - receiving IV Synthroid, steroids, and other IV medications. The half-life of IV Synthroid is 9-14 days. Then Im back for more. Thats the ONLY way Im staying alive with my TSH being 300+ and my T4 remaining at .07. It didnt magically change overnight because it doesnt. It takes time to process in the body. So, random endo, dont you DARE question my compliance. I know my body better than you do. I know what it does and doesnt do. So do my regular doctors. If you cant figure it out, then dont. Call someone else. But dont think this is a game. This is my LIFE. Id like to live more of it, but with people like you, Im sure to be dead before the weekend is out. Im so frustrated. The steroids they shot through me arent helping that frustration, either. They wake me up and help my heart, but Im so sad, and still really weak, and very tired of hearing youre so complicated! Wow! followed by, Well, I guess youre preparing to die. And this is why people go home - even if they are suffering - because its better to die with dignity than with accusations in a cold, unknown environment where no one else knows what to do for you. Sure, only one doctor is being a jerk, but it only takes one to ruin a year (or five years) of work on my case. And I dont have another five years right now for her to pretend to have solved anything. Im so sad. I miss James. I need help. I do NOT need to hear, You should be dead already. :/
Posted on: Fri, 26 Sep 2014 21:17:39 +0000

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