Its finally here! The Sickle Cell Treatment Act (H.R. 5124) has been introduced into Congress and needs our support. Please take a moment to visit and sign the White House petition asking the President for his support. This is currently the only petition specifically backing the Treatment Act. Please, please take a moment to sign it. We need 100,000 signatures in 30 days to make sure that its brought to the attention of President Obama. There will be a free video/phone conference and Q&A TOMORROW, Sept. 25th, at 4pm EST and again at 7pm EST, to explain the Treatment Act, why its important and to answer your questions. To join this FREE conference visit https://global.gotomeeting/join/894387981 on your computer, tablet or smart phone -or- call 1(215)383-1013 and use access code 894-387-981. For more information on the Treatment Act visit: sicklecelldisease.org/index.cfm?page=legislative-initiatives -and- https://beta.congress.gov/bill/113th-congress/house-bill/5124 Now is the time to use your #boldlipsforsicklecell https://petitions.whitehouse.gov/petition/declare-sickle-cell-disease-national-health-priority-and-support-legislation-expand-and-establish/jFgQrMJ7
Posted on: Thu, 25 Sep 2014 03:42:03 +0000
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