January 19, 2017 (day 14) Got to the hospital this morning filled with high hopes of Jason responding a bit more then yesterday. As we were walking into the MSICU my cell phone was ringing...it was a doctor looking for me to give permission for a procedure. We walked back to Jays room, and they were preparing him for a GI exam. I signed the appropriate forms and without getting to interact with Jay, were sent back to the waiting area. After almost 2 hours of anxiously waiting, wondering if something had gone wrong, the Doctor came out to say that the camera detected multiple small ulcers that looked to have started healing. He said that this could very well be where the blood in the stools was coming from, and why Jays hemoglobin seemed to always be low. He had advised the ICU Doctors to remove Jays feeding tube to allow his stomach time to heal. After the GI exam, the transplant team came in to assess Jay and they removed one drainage tube from each side of his chest!! So cool!! The neurologist was back in to assess Jay. ( they try to come every day or at least every second day.). Jay didnt respond to pain on the finger nails, but did respond when his the base of his neck was pinched. This was the first time he had done this. He didnt respond to any of the other tests, but his eyes did react to the light being flashed in them. Such a small victory, but we will take what we can get at this point. This afternoon the nurses had to reinsert a feeding tube as it had been pulled out after the GI exam. When they put it back up his nose, he ended up having quite a bad nose bleed, so the tube went down the throat instead. The rest of the day we spent coaxing and enticing him with all sorts of things to try get him to open his eyes or squeeze our hands. He was stingy today and gave us nothing. If he wasnt this sick Id freaking kill him!! Just joking. ( not really) Jays breathing on his own still with O2 at 30%. They have been putting him on support at nights to keep him from tiring his lungs, but they might try to leave him on his own tonight as he is doing so well. Everything else is good....blood sugars, blood pressure heart rate. Even his kidney function is improving. He was at 15-20 units an hour a few days ago. Now he is at 45 units! His keratin levels are elevated which is not good. Sitting in the waiting area for the past 2 weeks we have gotten to know a few of the families and their stories. One family has a daughter who got a liver transplant. A couple families have loved ones on life support with H1N1, and yet another family has a son who had a routine procedure that got botched. One gentleman in particular was telling me about his son who was on life support with pneumonia. He is afraid of loosing him and told me that when last talking with his son, he told him if he pulled through he would give him $200,000 to put down on a house in a new town. Afterwards I told Cathy and Miley that I knew what our problem was....we were only bribing Jay with burgers!! Xo
Posted on: Sun, 19 Jan 2014 23:56:38 +0000
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