June 27, 2013 Thursday As a parent, sometimes our thoughts are different than reality. Danielle and I have found ourselves concerned about William since he came home Monday night. He has only wanted to sit on the sofa and watch TV or simply stare off while curled up on the sofa. He did briefly want to go out and swing but wore out quickly. It is during these times we have to remind ourselves he has just undergone a major surgery. He is not going to just bounce back to his normal personality and activity. As parents we are looking at this as another part of his treatment and want to bring on the next stage of treatment...get rid of this cancer! It is times like this we have to slow down and accept the slow passage of time as he heals in preparation of the next round of chemotherapy. The nice gift tonight was seeing him start to have some spark back in him. He has started talking again and asked for "many things" or "lots of things" to eat this evening. Prior to today, he has taken a bite here and there of food but nothing of significance. He also had an odd statement out of the blue this evening. He was sitting on the sofa (where he almost lives at times like these) playing with a toy. He looked up at me and placed his finger on his cheek as if he was in deep thought. He said, "I think my cancer is all out now." My initial response is silence and then realize the only response it, "yes." He seemed happy with this answer and went back to playing with his toy. I never know what is going to come out of his mouth at times but I am always amazed at his thought process even if he is not fully aware of what he is saying. Chemotherapy is scheduled to restart again July 9 if his counts look good and he is feeling better. The discussion on whether or not to do the six rounds of chemo vs five rounds of chemo here in Savannah has been settled. We are going to do number five here and drop the sixth out of the protocol. Instead of the sixth round, he will go to Atlanta for the "Big Blast" and the stem cell transplant. Since he is responding to the chemo here, it is felt best to get him to Atlanta to try to really knock out whatever remaining cells are still present and clear him of this cancer. We will continue to watch him slowly improve and remind ourselves he has shown amazing strength through such tough chemotherapy and surgery for a little three-year-old boy.
Posted on: Fri, 28 Jun 2013 01:40:35 +0000
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