June 5, 2014 Day 33 Last night, I had planned on leaving around 6:oo pm, but the Doctor didn’t get into see us until 6:15 pm. I am assuming this was because our dear friend, Amelia, had to take a helicopter ride back here. With that being said, the Dr. was where he needed to be!! My heart broke when I read Amelia’s Mom’s news on Facebook. I was also sad that we were on isolation or I would have gone and said hi to Amelia myself. I did stop and talk to her family this morning and she is stable. I so WISH that cancer would just disappear. This is a terrible journey, but a journey that has the potential to be very rewarding. We have already experienced it. I just wish we could experience the rewards in a different way! Anyhow, last night when we talked to Dr. Ball they were still baffled. Lilly is positive for c-diff, her pancreas does have fluid around it, and we were told that the ct scan showed constipation. The docs are baffled because she doesn’t show signs of any one in-particular other than the constipation. They are giving her muralax to clear out her system and see how she does. Furthermore, because of the fluid around the pancreas, Lilly had to continue her clear-liquid diet. They wanted to let the pancreas rest. Let me just say that Lilly was less the amused. Dr. Ball asked her if she would prefer a popsicle-sandwich but Lilly wasn’t having any of that either. Thankfully, Lilly was allowed crackers and that seemed to satisfy her for the time being. The other thing we are concerned about is how she is scratching at her eye. Dr. Ball put numbing drops in her eye and seriously like 10 minutes later she fell asleep. When he came back in to further examine her, she was sleeping and didn’t get the best look, but is having an ophthalmologist take a look at it later. This morning, Lilly was grouchy because she STILL couldn’t eat and it made for a difficult morning for Dad. Jake was up with her every hour last night taking her to the bathroom. I on the other hand slept from 9:45 pm to almost 8:00 am. I was up a couple times with Paiser, but Jake by far gets the “who had a rougher night” award today. I arrived at the hospital around 10:30 am and thankfully the doctors still had not been in. We really just spent our time trying to distract Lilly from being hungry. I do not remember what time the doctors came in, but when they came in we still didn’t get a definitive answer to her belly pain. Because her belly isn’t sore anymore that leads them to think it isn’t pancreatitis. With that said, the imaging shows pancreatitis. One doctor thinks that she had pancreatitis, but is just at the tail end of it. We were also told, that why she has test positive for c-diff she isn’t showing the typical signs of that either. They think she may be at the start of it, so want to continue treating it because if we don’t in a few days, we would be in a world of trouble. Basically, they think the majority of her tummy pain was related to constipation. Anyhow, bottom line they are allowing her to eat again. (I WISH I HAD A VIDEO CAMERA. SHE WAS LIKE A KID ON CHRISTMAS MORNING WHEN SHE FOUND OUT SHE COULD HAVE HER HAMBURGER). They are monitoring her and are going to check her labs again in the morning. If everything looks good, we should get discharged. Lilly is doing great right now. She isn’t complaining of tummy pain anymore and is off the monitors. She isn’t even taking any pain medication. That is wonderful news for me, but I do expect her leg pain to come back when the steroids wear off. Baby steps-sigh! I will let you all know more when I do! Thank you for all the prayers!
Posted on: Thu, 05 Jun 2014 20:40:31 +0000
Trending Topics
Recently Viewed Topics
© 2015