Just a quick update since we have been home. Emmas procedure side effects are now minimal so her leg cramps are gone and her head aches. Her skin allergy seems to be slowing clearing up also. We will have a follow up MRI in Orlando on December 16th. Emma has caught a little low lying cold that we are trying to fight off with echinacea, ginseng, vitamin C, zinc and liquids. Her spirits are great and we Thank God for that. As for DIPG, There is only a few hundreds diagnosed a year... which is less than 10 in Florida alone and means its a rare brain tumor and you tend to reach out to other families with research options and dig for hope. These last few weeks I have read about many beautiful little souls being laid to rest so if we could pray for all the families that would be great. Prayers for the beautiful souls of Daisy, Nasya, Michaela and our St Jude fellow patients Jaxon S and Ashton. Thank you also for continued prayers for Emma. We are looking forward to going home to Toronto for Christmas this year.
Posted on: Fri, 21 Nov 2014 03:26:50 +0000