Just finished watching this wonderful documentary about EDS. By the end of the 48 min film I was in tears. While I have no intentions of walking a marathon, I do on a regular basis dance them. My body is in constant revolt afterwards telling me how stupid I was for being so ambitious because of having faulty tissues. Laras story could be my own. We share both an EDS type 3 diagnosis, problems with our autonomic system, a heart that doesnt like to play well when we need it to the most, and everyday pain that would keep most people in bed. In one scene,its her birthday and shes come down with a resperatory infection but its her birthday and she has no intention of letting illness ruin her day, she chooses to suffer the consequences whatever that may be later. I remember a birthday bash of my own where I chose not to let bronchial pneumonia ruin my fun, my friends in the end forced me to go home after a couple hours and I to had a lovely visit to the ER soon after. Living with a painful, invisible illness makes us very good liars. We lie everyday, even to ourselves, about how we feel. We lie to not get that look of pity, that look of disappointment, or worse skepticism from friends and loved ones. We down play how its a struggle every morning to get out of bed and not return to it. We lie everyday to keep our jobs, our friends, our sanity, our sense of self. We learn early on through the painstaking task of seeking help from medical professionals over the years to hide things after being told theres nothing wrong. We learn to downplay our pain and emotional struggles on how our bodies have turned against us because no one, even our own family, believes our problems are real. This documentary serves as a lovely tribute to the power and stregnth it takes to have EDS or any other invisible illness, to those whove lost there battle with this life altering and some times deadly disease, and an eye opener to anyone who loves/ has contact with someone suffering with an invisible disability. We do suffer, but we suffer more from ignorance of others and lack of empathy for what it takes to just make it through everyday. #EDS #LARABLOOM #THEPAINISREAL #STOPINVISIBLEILLNESSES #ISSUESWITHMYTISSUES
Posted on: Mon, 19 Jan 2015 20:43:48 +0000
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