Me and CFS = what gets me down... Guilt and self-blame – I blame myself for the effects CFS causes for not recovering from it and I feel guilty that I have to ask my son to cook dinner for me and to care for me by bringing water up to my room etc. Feelings of powerlessness – The inability to do all the things in the house which used to be possible causes me such frustration that I can cry for hours. Pressure to increase activity – I often feel pressured to increase physical activity faster then my body allows can cause frustration, for example meeting up with one of my children for a meal so as not to cause disappointment and because this worsens the condition, I get even more upset with myself and life in general. Wanting to rewind the clock – I dwell so much on the person I used to be... how I could get up at 6am do housework, go into work, hold down a full time job, come home to the children cook, clean, do homework with them. and so on and so forth. And CFS took this all away. Frustration – I want to live my life, go out visit museums, walk the beach, go for lunch undertake other activities but am prevented from doing so because of the symptoms of CFS. Fear - I fear the future remaining unimproved... getting worse... will I end up in a wheelchair. I am barely able to stand up to do the dishes. I had to give up my employment, I am financial insecure, well broke is more the truth I have no, social life and my relationships with my children have suffered. I feel so selfish if I ask for help. So hurt if help is not forthcoming and generally miserable all the time.
Posted on: Fri, 31 Jan 2014 17:55:09 +0000
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