My 3-Year-Old Daughter Needs Your Help (Sweety Makwana, 31, is a single mother based in Sydney and a winner of Indian Link - Mother of the Year 2013 Award for her Mission Twisha to save her only daughter.) Twisha looks like a happy and cheerful three-year-old girl. But my daughter suffers from a very rare birth defect - LGOA (Long-Gap Oesophageal Atresia). In laymans terms, it means Twisha was born with an incomplete esophagus (food pipe), hence she cannot eat/swallow anything. Her tiny fragile body has undergone 20 surgeries in Sydney to cure her condition but unfortunately, all were unsuccessful. Presently, there is a hole in Twishas stomach through which we inject formula milk directly into her digestive system to keep Twisha alive. There is another hole on the right side of Twishas chest to manage her secretion. The poor child goes through painful dilation every second day. I have been a victim of domestic violence and dowry harassment, so I know what its like to fight for a better life, and I am determined to do that for my only daughter. While doctors have offered alternative and less expensive treatments (such as Gastric Pull Up, Colon Interposition, and Gastric Tube) for Twisha in Australia and in India, these could damage Twishas other body organs such as her stomach or colon, which could cause long-term serious medical complications. Medical science accepts that, Repair of native esophagus is the best rather than replacement. Foker Treatment in Boston, USA can help Twisha to get her esophagus repaired. In the Foker procedure, doctors stimulate the growth of the oesophagus by traction sutures. The baby is kept sedated and paralysed for a couple of weeks/months. When both the ends of Oesophagus have grown sufficiently, they are sewn together. The cost of this procedure at Boston Childrens Hospital is a whopping US$1.2 million. So far, I have managed to raise US$550,000 in the past two years. My heart dies every minute I see those holes on Twishas tiny tender body, I see her crying when she gets fed via a tube. I see other children going to school and playing in parks. I want that for my child. Twisha wants to eat her favourite chips but the fear of choking means she cant. Ronnie Screwvala, the famous Bollywood film-maker, has donated generously for Twisha. Rs. 3.5 crore has been raised, yet another Rs. 4 crore is needed. Every cent counts.. Every prayer counts. To donate visit twishamakwana/Donation.aspx Contact us for more details at missiontwisha@gmail or Mobile: +61-425-147-970 Twishas Facebook page: facebook/missiontwisha and Twitter: twitter/missiontwisha
Posted on: Sat, 08 Nov 2014 23:51:15 +0000
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