My whole world turned upside down on march 2013 when I was told it looked like mnd.on that day cant remember much. When you get bad news you get ringing in your ears and didnt take anything in. I didnt know what motor neuron is but I knew by the doctors reaction it was serious. My mam was numb and said afterwards she knew someone who died with it. Steve was outside and mam had to explain. I was then on crutches and thought I was going to collapse in a heap in shock. I was crying immensely. I was told I was being referred to prof orla Hardiman in Beaumont hospital in Dublin. When I went home and dad asked I couldnt explain but remember melting in his arms. I looked it up on the Internet which was the worst thing to do. The worst case scenario popped up. The words breathing mask death and no cure came up. I asked why me. Why not someone who had done bad things. The coming weeks were long and upsetting. I couldnt eat or think straight. The end of April 2013 it was confirmed that I had spinal onset mnd. I thought my life was over at that time. Steve certain family and friends have been my amazing support system. They planned and still do plan fun things for me to do and help me achieve my goals. Certain family and friends have left me down but thats their loss. I now realise my life is far from over. Its just an uphill battle and ill b damned if I let mnd win. For anyone told this devastating news your life isnt over. Stay positive. I believe in positivety and hopefully a cure someday
Posted on: Fri, 08 Aug 2014 15:04:25 +0000
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