No surgeries scheduled yet; cause hes still too small in weight to handle the anesthetics. Have to also wait til neurology & neurosurgeon sees him, so they can determine risk factors. He has to change formula, in hopes he can handle it better & itll put weight on him faster & is easier on babys bellies. He has another feeding study on Thursday, to see if he can safely eat more from a bottle or be looking at a feeding pump if not, thatll help regulate his feeds via the tube. If neurology says his seizures are still being controlled fine with his meds & neurosurgeon doesnt see any major risk factors with the brain & he gains enough weight, then they feel they can do something surgeries. They may even make a mouth piece for his cleft palate in order for him to not have so much issues with mucus buildup too, but he also has to get bigger before they can size him for that.
Posted on: Mon, 31 Mar 2014 15:34:17 +0000