Nothing concrete to report back from all the appointments this week . She didnt cooperate for the swallow study so it was hard to tell how that went . She did sit perfectly still for the first time for the blood draw which broke my heart a little . Its become her normal and that really stinks . Our GI Dr has a couple plans for some further testing but nothing definitive yet . Dell childrens does not have the eye equipment that we need for the next round of testing for her eyes so we will either be traveling to Texas Childrens in Houston or possibly having it done at A.I DuPont when we go in October . Her sugars continue to be all over the place . Our best plan right now is to get her back on the Dexcom system . Still fighting with insurance to get coverage for that .
Posted on: Sat, 27 Sep 2014 17:11:24 +0000
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