On May 17th my family, friends and I will be walking in the - TopicsExpress



          

On May 17th my family, friends and I will be walking in the Hartford CT Angelman Syndrome Foundation Walk. As happy and carefree as Cole is, it really is a terrible genetic disorder. As you probably already know, he will require life long care, and may not be able to speak many- if any- verbal words. He also will constantly be at risk for severe, hard to control seizures. However, Cole is walking now - almost all the time, and can communicate with us using his ipad, some simple signs and ALDs. Please consider a donation to the ASF for our team, Team Coleslaw, to help find a cure, fund research and to help families who need it. Thank you in advance. secure.angelman.org/index.cfm?fuseaction=donorDrive.participant&participantID=16659
Posted on: Mon, 24 Mar 2014 13:25:27 +0000

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