Peter Dutton has taken the unusual step of blocking members of the CF community from putting messages about YesToKalydeco on his Facebook and Twitter sites. We are upset that he is not wanting to listen to our valid concerns about his governments failure to move quickly to help those in our community whose lives could be dramatically improved on Kalydeco. CFA CEO Michelle Skinner has contacted Minister Duttons office and is awaiting a response. Updates and additional information will be posted as it becomes available. CF organisations are urging everyone who is affected by the Kalydeco decision, and those of you who might be one day, to begin writing letters to Peter Dutton and your Federal Member asking them to support the introduction of Kalydeco onto the PBS and raise this matter in Question Time.
Posted on: Mon, 14 Jul 2014 04:00:00 +0000
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