Posting with question::::::: as I have seen so many with other issues / immune system disorders or diseases, and want to find out how you find out. After seeing all this and being so fatigued, and one day watching a commercial for Fibromyalgia, I felt like I had every single symptom, as first thought, just maybe the same symptoms as HAE, i hurt at times most times (to the touch, I wont hurt unless someone or I touch myself then its like ouch but for NO reason, no bruise, nothing, in calf, back, arm, nothing that I would say was a clot or anything like that, just sore to touch even noticed one time in shower when washing my hair, always attributed it to me HaE) I asked my PCP, and he looked a little hesitate to run any special ANA or antibody test to look for anything else, he agreed but I have heard that their some not as good as other and have to be sent to a special lab, what lab and how do you get your doc to do that????? Any suggestions, just wanting to find out if all I am experiencing is HAE or their is any immune as if their was that would explain a lot for me, not necessarily good, but not bad and would as I said explain some things... Thxs..
Posted on: Mon, 01 Sep 2014 03:49:45 +0000
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