Powerful amazing unbelievable but great brilliant ..19 years old an type 1..congrats to a amazing young man an his mum for fighting for his life ..thats a result an proves that these precious children have a God giving rite to life ...we all so have a beautiful precious baby girl called Caoilte ( sounds like keel/ Sach ) our fight has just begone for her rite to be treated ...they told us she has no future an to take her home for end of life care we refused an protested the health office send loads of emails to get her a trachy..at the 11 hour when her heart stop twice they wer still saying no .but we never give hope an kept trusting in God an he came through big time ..she has been in hospital now 9 months an is doing great we are just waiting for carers to get train up so wee can have are precious cupcake home for good an to enjoy many years with her...my message to all parents of S.M.A babies never give up hope god give use this child for a reason an a purpose God does not make mistake ..the doctors will give you no hope an do everything to make u feel bad like so you just want them to suffer thats a lie our Caoilte is a very bright loving funny cheeky an everything that a child at 14months should be ..an she has bought so much love an happiness in to all our lives an the lives of strangers ....an we thank our Lord sooooo much that he choose us to look after her I love her more than life an I love her that much it hurts ...an God has given us the strength We need to face another day no matter what is thrown at us because in God we have everything ....💗 🙏 an this is our precious little Braveheart Caoilte Fitzsimons xxxx an this is from me her nana Noirin Nic An Bheatha xxx
Posted on: Thu, 07 Aug 2014 16:00:56 +0000
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