Prayers for normal thyroid levels so she can remain off meds. Would be nice to remove medication from her body, but at the same time, the Pediatric Neurologist called today after reviewing her consult letter her Dr sent over & got her in immediately this Fri. so we can start a new regimen of preventative pain meds for her headaches & spinal cord pain before school starts to try to work through side effects. Met with the HS principal today & the assistant principal has been calling every few wks to see how things are going & what plan of attack we will go with. She will try full time & even start gym classes for the 1st time since 4th grade. Knowing she missed 75 days while going part time last year & doing some cyber at home, they understand we will tweek what we need throughout the year. They are all on board to give her as normal a childhood & school life as possible with her pain, fatigue & weak immune system in mind. Praying this year is the year of a turning point for Kasey. We are grateful for how far weve come & taking it all a day at a time as it all comes. The boys have been staying busy & Kaleb is prepping for Penn State, while Kato will remain at home & utilize his scholarship & fin aid money to take Elementary Ed & Song Writing classes at HACC, while working at the same time. He turned down a 25K scholarship he worked so hard for at Full Sail in FL, but realizes he just doesnt want to leave home at this stage keeping in mind what is practical. He isnt closing the door on rooming with Kaleb at PSU York & attending next semester since he too applied & was accepted with a nice package. Kasey has been bummed about not getting to go on vacation so we are taking her & a friend camping then to Hershey Park this weekend & she is really excited. My last min planning is typical with running in circles. I think Gene & I have accomplished more in the past few months than we have in so long, but I suppose beating cancer trying to keep the family together was more important than all else in life. We are all thoroughly spent mentally & physically, but feels like we are at least living again & that is a good thing.
Posted on: Wed, 06 Aug 2014 00:10:18 +0000
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