Question for anyone who would like to contribute, Im trying to get - TopicsExpress

Question for anyone who would like to contribute, Im trying to get an idea for the boys future - if you could share: How old was your child was when they started manifesting symptoms? What type of Gm1 do they have? How old they are currently and the state of their symptoms now? Any info would be great. Thank You so much! I just found out a few days ago that it has been confirmed that my younger son who just turned 2 also has Gm1 type 2. I think Eli (5 year old) started showing symptoms before 18 months, so I think he probably has the late-infantile. Evan is showing slight wobbliness, beginnings of strabismus and speech delay, but he still seems so active and happy.

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