Quick update on Izzy. We have had a ton of appts this last week. They have ruled out by examination all other possibilities except MAS. The geneticist will see her in Mar and will likely rule them out by genetic screening at that time. We are attempting to do no un-needed testing. Diagnosis or not, the treatment will be the same. So, we have decided to refuse invasive testings and minimize as much as we can.. including doctor appts. At this point we are watching for complaints of sore limbs and limps which could be the first sign of bone trouble. And for any signs of her period starting. They will continue to monitor the cyst and have regular checkups with each doctor. But we have extended the appts to every 4-6 months apart. So hopefully, we can have our life back a bit. It is becoming more and more clear that this is really happening to her. Please pray for us all. It is hitting us hard and coming to a point were we need to talk to Cayden and Riche in more detail over what is happening.
Posted on: Wed, 29 Jan 2014 17:20:46 +0000
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