Rep. Bill Posey (R-FL) wrote just 13 days ago: At a recently called House Oversight Subcommittee meeting, Dr. Insel admitted that after eight years and spending $1.7 billion, the programs developed in the CAA have 1) failed to determine the causes of the enormous increase of the prevalence of autism, 2) failed to prevent a single case of autism, 3) failed to produce any new biomedical treatment for autism, 4) failed to materially reduce the age of diagnosis of autism, 5) failed to ensure appropriate medical care for the co-occurring health problems faced by many with autism, 6) failed to ensure even basic safety protocols for people with autism who wander, unfortunately some to their deaths, 7) and overall, failed the families facing autism—most especially the approximately one-third of families with children most severely affected by autism, who literally cannot speak for themselves, and whose severe disabilities portend one of the largest unfunded federal fiscal liabilities of the 21st century. ************************ Rep. Posey identified correctly why the CARES Bill needs to be delayed. Selected researchers, advocacy groups and service providers want this bill to be fast tracked. They will all benefit from the $2 billion that will be spent on autism over the next five years. Us parents who want better tracking on prevalence, prevention, biomedical treatments, recognition of co-morbid conditions, safety protocols, and more support for families will be left in the cold. This bill is simply not good enough.
Posted on: Thu, 26 Jun 2014 16:43:25 +0000
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