STORIES FROM OUR COMMUNITY, DAY 10: 1st photo (Oct. 15): Contributor - Rashon Eugenia Forrest (ow.ly/CWunV) “This is what Spina Bifida looks like. I am 1 of the 166,00 people living with Spina Bifida, club feet, and hydrocephalus. Next month itll be 28 years. Next year it will be 20 years since I have been hospitalized because of SB. I became and do everything the doctors said I wouldnt become and do. All praise goes to God. #ASecondForSB See more of my story at @DaylightFoundation or @The_Lil_REF on Instagram.” 2nd photo (Oct. 15): Contributor - Brooklyn Strong (ow.ly/CWvkO) “Do you have #asecondforsb” 3rd photo (Oct 11): Contributor - Jennifer King Camp (ow.ly/CWw8r) Gracie has myelomeningocele #spinabifida, shunted hydrocephalus and Arnold chiari malformation, but they dont have her! #asecondforsb” (With The Spina Bifida Association of the Carolinas) 4th photo (Oct 6): Contributor - BlazeSports America (ow.ly/CWwMq) October is Spina Bifida Awareness Month and we cant think of a better way to mark it than to share a few lines from a poem, titled Where Im From by Josh Joines who participates in wheelchair basketball and track and field with BlazeSports. ‘I am from a dribbled basketball because every time I get thrown down, I bounce back higher. From the looks of ‘They can play basketball?’ I am from proving that the disabled, yeah us, we can play, too. I am from my disability always being a part of me, but never defining me.’ #MotivationalMonday #SpinaBifidaAwareness (With Spina Bifida Association of Georgia) 5th photo (Oct 1): Contributor - Chunky Potatoes (ow.ly/CWzfM) Hi, my name is Priscila and Im a special needs mom. I say it with pride not because it defines me, but because its a role that I was [unknowingly] built for and that, while hard at times (lots of times...), is very rewarding. Motherhood as a whole is rewarding. “With that said, October is spina bifida awareness month. And there will be myriad posts from me this month that have (almost) nothing to do with Chunky Potatoes and everything to do with the little girl pictured, our current little potato (soon to be middle potato). “Eliora has spina bifida, a ‘snowflake’ birth defect - referred to as that because it affects each child differently, theres no standard or norm. I also call it an umbrella defect because there are many conditions that fall under the spina bifida umbrella - hydrocephalus, neurogenic bladder, Arnold Chiari malformation, etc. “So youll be seeing a lot of her this month (what else is new?), especially if you follow me on IG: priscila_chunkypotatoes. “I thank you, friends, for allowing me to share more about us. I hope you enjoy this months social media spam. — with Priscila Benson and BJ Benson.” 6th photo (Oct 16): Contributor – Dala Alderman (ow.ly/CWAeq) Spina Bifida Awareness Month: Adam: Miracle & Blessing. SB doesnt slow him down! Love him to pieces. #ASecondforSB”
Posted on: Sat, 18 Oct 2014 01:35:13 +0000
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