So sorry Anthony, I just saw this post. In a brief answer, physically and spiritually Chris is doing amazingly well. We go back to UCSF on Nov. 14th for a heart biopsy to check for rejection, meet with our transplant team for check up and medication adjustments and then a meeting with Patient Relations Rep. and the whole surgical team who was in the OR during his transplant when he became blind. At that time they are going to tell us what UCSF decided on their DISCOVERY Phase on who was responsible if anyone on the OR team or if it was an act of natureand take no responsibility. Such a mess. Chris is handling life much better then I am lately so I am holding onto a thread with my faith because honestly, I JUST DONT GET IT?????. I miss my strong, full of life husband that we all knew. He is still Chris, yet so completely different as he has lost so so much other then his sight. Yet he says If God chooses to return my sight then Thank You God, but if he decides that I am suppose to live my life in the darkness then my answer is the same Thank You God WHY Because it is Gods perfect plan and that is always the correct action and he can accept that He lost his youngest son at the moment his son heard that his Dad had gone blind. Wont even send a text or call and say good bye. Chris became a blood related Grandpa a few days back and his daughter says she is a christian but Chris will never see his grand daughter both due to blindness and also his daughter to not being able to find forgiveness for something so long ago and not any worse then most of us have done dealing with relationships. So sad to see him cry. Our Matt his step son is amazing with Chris and I and so is his amazing girlfriend Whitney and all 6 kids dont even notice he is blind just climb onto his lap whenever they feel like it and just jabber at him and bring him toys. I would be totally losing my sanity if I did not have my family and getting to see my grand kids almost on a daily basis. So on my part, I just ask everyone to pray for me, pray that I stay in his word, and worship and try to hear if he is trying to tell me where I fit into this whole new LIFE AS WE KNEW IT. Chris starts Cardiac Rehabilitation at Saint Agnew hospital on the 29th this coming Tuesday morning. i am so glad because he is very weak and has lost a lot of weight. We will start getting training on his living with blindness when our government catches up on what didnt get done while they were shut down. Cant get our medical coverage switched from merced county to Fresno County. Love our new home and nice to have more room to be in since we are still stuck at home most of the time. So much more but just to numb to share them with everyone. Looking forward to seeing my Sister and Niece and Husband and her 3 great kids. It has been way to long and we are gathering for my amazing nephew Steves wedding to the woman of his dreams. Praying the day on Friday is just perfect for the two of them. Chris would love to hear from anyone who wants to call him. Just PM me and I will give you his phone #. Love and Miss You All and hope to be up there to church in the next couple of weekends just to share a service and worship and get lots of hugs from our church family. Anthony, Misty, Charlene, Dominic and everyone else, we miss you lots. Keep asking for updates. I havent been getting on here very often at all, so it may take a few days to get a reply, but we can always be called. That is when you hear Chris laugh and dreams that my husband is in side there some where. I truly appreciate when his friends help me out and just check in with him personally as he says, he is blind but he can still hear and talk. Hoping my next update is more focused and not in the grieving stage for me. Hope all is well in all your homes my church family
Posted on: Mon, 28 Oct 2013 01:59:21 +0000
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