So, this is my life like everyday…….. I woke up this morning and immediately was contacted by a pregnant mom friend asking advice about which vaccines she should get at her next doctors appointment. This happens a lot and I welcome it. Usually I would respond by giving them links to resources, articles from medical journals, books, vaccine inserts, etc. Id tell them to trust their instincts. Well, this morning all I could say was I wouldnt get any vaccines while pregnant and I told her she could call me at anytime for more info. I would hate to see her baby have any issues (special connection between this unborn baby and I that I cant explain). Constantly worrying about other peoples kids and infants along with my own children. Ive been told before If I were you, Id just be worried about my own children! To which I responded, If you were in my shoes, you dont know what the hell youd be worrying about!. Then I had a last minute playdate with 6 kids and two of my friends. BTW, Im still in my PJs right now! Chase ran away or fussed with any attempts by the other kids at interaction. The other kids played great together and had a blast. Wesley is really good with other younger kids, which brings me to a very sad place just thinking about what kind of close relationship he and Chase were robbed of. This is absolutely heartbreaking for me……... For Wesley and for Chase and for me. Legos are everywhere (Wesley is a lego maniac and really good at building) and this means I have to make sure that Chase doesnt put them in his mouth. Right after they all left we had a CODE BROWN on my dining room table and two chairs (this one was really spread out and not formed). Honeybadger has had a few food infractions in the last few days :( I need to go to Whole Foods, but I dont have the energy it takes to bring them to the grocery store (also a 50/50 shot that we could have a meltdown). These are the things going on in the back of my mind from the moment I woke up: I need to find a venue for an upcoming autism benefit that I am planning and Im having trouble, but its soooooo important to me to get this scheduled because I have so many local Autism mom friends that REALLY need the grants to help their kids! I also need to start working on getting items donated to be raffled off at this event. I need to get prepared for our appointment with Chases New York doctor on Wednesday (phone appointment). Schedule lab work with another provider in another state. Figure out when I can get Chase back to Georgia for another follow-up EEG to see if we can get more info about possible seizures and meet with his other doctor for next step advice. Is Jadens school using Common Core? Wesley has football tonight, does he have everything he needs for that? I need to see my friends new baby and bring her a gift. I need to call and check on two people (a good friend and a relative of a friend) who contacted me in the last two weeks about their newly diagnosed kids. Where can I get a free (donated) minivan for another friend in need?!?! What are we eating for dinner tonight? Should we go back and see our old geneticist? And then there are Wesleys daily one thousand questions…… How old is baby Jesus? Do you like this better or that? (his answer is always the opposite!) When I am 19, how old will you be? When Chase is 12 how old will Jaden be? When Daddy is 83 how old will I be???? (these are so often and involve so many people that Ive seriously considered making a chart!!!) I am not a mathematician! Who is stronger, a Transformer or Incredible Hulk? (These questions are interchangeable with Ninja Turtles, Spiderman, Superman, etc..) (and I always have the wrong answer to those as well). When is Chase going to talk? Why is Chase crying? Why doesnt Chase talk? My brain and heart are tired and drained :(
Posted on: Mon, 18 Aug 2014 20:50:33 +0000
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