Some, if not most of all of my friends and family know I have a - TopicsExpress



          

Some, if not most of all of my friends and family know I have a genetic brain abnormality called Chiari Malformation and had surgery to correct it on 4.30.1999. While my condition is invisible for anyone to see, the pain and suffering is very real and debilitating. IF you see me and i am not feeling well or seemingly in a bad mood, just realize that I am going through a battle which none can see as i look fine on the outside. If i get scatter brained and talk about random stuff that makes little sense if you try to follow along, know that I am suffering and it isnt something I am doing intentionally. On top of my brain abnormality, I also suffer Complex Partial Seizures and Cluster Headaches, so if you think i am having a stroke, do not worry, I am having a Complex Partial Seizure, I will be fine in 15-20 minutes, you can ask me all the questions you want but I have no recollection of events during this time. If i am rocking back and forth and sound like I am mumbling and my eyes look like i got poked in the eye, full of blood, know that i am suffering a cluster headache and there is nothing you can do, as much as most want to help, I have to suffer through it. The worst thing is when I go through all of my symptoms of each of my abnormalities at the same time, IF i tell you I want it all to end and just want to be put out of my misery, it is the excruciating pain I am going through and I do not want to harm myself, i just want the pain to end and it will. So, it is all in my head (pun intended) and do not pity me or feel sorry for me as I do not want pity or sorrow, I just want everyone to know I will be okay, just give me some time.
Posted on: Mon, 25 Aug 2014 08:02:39 +0000

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