Some of you have already seen this on my own page but I HAD to share with all of our Chiari Warrior fans and supporters!! Im so extremely excited to announce that yet another amazing opportunity has come up as a result of all of our Chiari Awareness efforts! Myself, Kendall and McKayla will be making a trip to Staten Island this weekend for the Chiari and Syringomyelia Foundation Charity Ball! We will be able to meet our amazing Chapter Coordinator Cathy Poznik and Kaitlyn Esposito FINALLY after 3 years of chairing the walks and constant online and phone interaction we can hug the people that started this amazing organization!! This foundation is who we looked to upon Kendalls diagnosis and who we still do to this day! Bonus to the ball? We will see at least one of Kendalls surgeons and numerous people from the Chiari Institute! I cannot begin to tell you all how excited I am! Not just for this wonderful opportunity but also for the chance to have some mama-daughter time! Thank you Cathy!!! See you Saturday!!!
Posted on: Wed, 12 Mar 2014 09:56:08 +0000
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