Sooo last night was awful, 2 out of the 3 hours I had to sleep , Myles screamed. Im so tired today as is Myles. Myles was so brave today. First he had his blood taken and barely even fought me about it. Next he headed to cardiology for his echocardiogram. The lady who does that test has done them since he was a baby. She spoiled him with tons of cars and stuffed animals, even gave him her box of cookies she brought for lunch bc he wanted chocolate. Next stop was dialysis. While waiting for our doctor to come in the surgeon actually suprised us first. I went into this apt thinking I was going to have to defend Myles and why he needs this kidney now, turned out it was kinda the opposite. They all pretty much had to convince me that he needed the transplant now. Once talking to the surgeon it all just became real. The surgeon walked in the room and first thing he said was um hes freaking tiny. I thought right then ok hes not gonna do it. He asked many questions, all of which I had answers for. Looked at his belly, asked if his fill volume was up to 500 which it has been and said ok lets do it. Of course he went over the whole process with us and had to tell us the risks. He told us that just six months ago they had a little girl Myles age die right after surgery due to complications. I about threw up after hearing that. I started thinking umm no, no transplant, even thought lets put this off a year. After the surgeon left his doctor came in and settled me down and somewhat helped. They all agreed that transplant needs to be done now bc they dont want him doing dialysis for over 3 years. She said the surgeon wouldnt of said yes unless he was 100 percent confident. I guess that little girl is the only kid hes had die in the hundreds of transplants hes done and he took it really really hard. Myles will only be the second person hes agreed to transplant since. I feel like im going to get sick as I type just thinking about everything. I know this has to happen and its great great news but at the same time it kills me that he just cant be a normal little boy. So now the plan is I have to wait a couple days to get my final blood test results and then I can call and schedule his transplant. Prob about a month or a little longer. Ugghh so much to do!
Posted on: Thu, 14 Aug 2014 19:38:12 +0000
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