Thank you everyone for all the prayers and support! With how - TopicsExpress

Thank you everyone for all the prayers and support! With how much every one cares I wanted to share with you exactly whats going on and as best I can where Lexis at. Here goes. Tuesday the 23rd, she was born, a few weeks early but not a big deal, at Moses Taylor. She was taken immediately to the nursery then the NICU shortly after for some apparent fluid on the lungs. Again, normal for a baby born at 36 weeks. She rebounded quickly and went thru a few little related issues, oxygen sodium etc. She was all but set to come home on Christmas, the 25th, then the 26th 27th, and28th, but each day was another postponement due to high billirubens (jaundiced). Each of these days her level would spike, just enough to keep her there, then plummet back to normalish. On Saturday, the 28th, we went to visit her in the late afternoon. She had just begun to spit up a little bit, and kept doing so repeatedly while we were there. After watching the nurses clean her up several times and cleaning her up myself time after time, I requested they call for a doctor to come check her immediately. When he came in and checked her, he noticed that she had spit up had coffee grounds in it, which is actually coagulated blood. This can be from blood in breast milk, an ulcer, or a number of other minor and major things. As he was talking to me, she dirtied a diaper, which he opened and discover quite a bit of blood. He then sent her for an xray, saw something he was unsure of and immediately requested our consent for her transfer to Danville. She was life flighted, had one test done, and rather than risk wasting more precious time, our consent was again requested, this time for immediate exploratory surgery on Lexis abdominal cavity, to either rule out or discover the worst case cause of their findings. We got this call as we were getting off the interstate near Danville. We arrived with a few minutes to hold and kiss our little girl, and then off to surgery. What was discovered was the worst case scenario. Lexi had a Malrotation of her intestines. IE when she was forming, her intestines and Colan did not move into the correct place from where they initially form. What this then caused was at some point after Lexis birth they attempted to correct, and ended up just twisting and kinking right below her stomach. This stopped virtually all blood supply to her entire intestines. So, her small intestines began to die. The placement of the twist was at the worst possible spot. If it had been lower than there would have been unaffected intestine above it. The surgeon untwisted her little belly, and hung most of her small intestines in a plastic silo bag above her so they could swell and get blood flow, without being pinched. In short the out loom we were presented was that her intestines only had a few spots that may be savable, and even if there is any, probably wont be enough to keep her alive. Also a transplant is not an option until she weighs 20 lbs (currently weighs 6.5 lbs, and can only be fed intravenously). They planned to give her 48 hrs, then go back in and see what had began coming back to life and what had further deteriorated. She was predicted to possibly not be able to survive until the surgery, and also to likely loose blood pressure or bleed out during it. We and all of you and I think half the rest of the world began to pray. She did her share of fighting, though nothing like predicted, and arrived at the O.R. in as tip top shape as anyone with an open tummy could on their 1 week birthday could. Surgical results, Almost all of her intestine is STILL ALIVE!!! Praise the Lord!!! It is very bruised and irritated and has about 5 inches of ganggreen (sorry I dont know how to spell it). He washed it and her inner abdomen, took out and segregated some of the worst spots, put in a stoma on her side to allow drainage. The surgeon then put in a new silo bag, for her bowels to swell in. Her next surgery is planned for Friday. He will go in and begin removing bad tissue, and restricting and reconnecting the good tissue. This could be done in just a few or several surgeries, mostly depending on what Lexi can keep up with. She also has to battle all the bacteria released into her body when her intestine began to rupture, and many other finite medial factors. She is currently on breathing assitanse and 14 plus IVs, including blood pressure meds, morphine, 3 antibiotics, and daily blood transfusions. She has a long road ahead, and will definitely know all the wonderful staff at Danville quite well, but its looking quite promising for our little Coo Coo Bird, Lexi!!! Again thank you for all the prayers and support! Please keep praying for our little girl, shes already a miracle, and Amanda and I know shes going to be an even bigger one!