Thank you for the add! I am fighting Glioblastoma Grade 4. I was diagnosed April 20th 2012. I am 33 and I have 4 daughters 13,11,6, and 4. I was life flighted from Fayetteville, AR to Rochester, MN. They could only remove 60%. I have been keeping the other 40% stable with Temodar and Vorinostat(SAHA its a trial drug I. phase II.) 7 days on and 7 days off for the last 28 months. I was told my chances of survival were max 14 months. That was not happening. I didnt try and hear that. I feel that I would not be able to tolerate all Ive been through. Seizures, pulmonary embolism, blood transfusions, 6 weeks of whole brain radiation without cannabis. It is my medicine that has kept my spirits up, my food and meds in my stomach, and pain from other autoimmune diseases I have at bay. I am here to talk to anybody for support and am looking for friends that know how this disease is the hardest battle anybody could fight!
Posted on: Thu, 31 Jul 2014 01:22:35 +0000
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