The beginning of the end... If you cant handle reading my journey sorry not sorry. This is my life my therapy at 10 years. Maxie is and was love. There are other people facing this it might make you know how to help them. Tuesday, March 23, 2003 I PUT UP LINKS FOR ELLEN AND OPRAH BELOW! TOM HANKS IS GOING TO BE ON ELLEN FRIDAY, LETS GO GET HIM! ALSO WE HAVE A HUMMER DEALER THAT IS GOING TO TAKE HIM HOME FROM THE HOSPITAL WHEN HE GETS OUT! THANK YOU ROB CROXTON AT MOORE CADILLAC HERE IN RICHMOND... Christy called and woke me up! It is 2 PM, WOW! I must have really been tired! She said his color is very good and heart rate good. Still a little temp but they want that to kill infection. She sounded better! OH, SHE SAID THERE IS BLOOD IN HIS TUBE FROM HIS NOSE, BRIGHT RED BLOOD! SHE HANGS UP! NOW YOU AND I KNOW THE SAME THINGS AND ARE NOT AT THE HOSPITAL! SEE HOW I FEEL WHEN I GO HOME! DRIVES ME NUTS.. BUT I NEED TO WASH CLOTHES! She called back and said that his white count is 22.... You should have 22,000! They know the fungus is a very normal port fungus so they are glad they took the port out... and I am glad he is in ICU. TUESDAY MORNING: What very bad days Sun. and Mon. were. It seems like they just got worse and worse. Maxies fever kept going up and up. With his stomach closed, meds by mouth do not do much good and by rectum they did not seem to work much either. By Monday morning we knew there would be no by-pass surgery now, with his temperature, but we wanted to know what was going on. Maxie was sleeping almost all the time now. They had to take blood from his arm and he didnt even fuss much. Even Christy did not fuss much. They soon came back in and said that his port had a fungal infection and it had to come out ASAP. They already had the time scheduled in surgery for Max so down stairs he went. Christy went down with him and Rebecca and I sat in the waiting room. When they let us in to say good-by and I saw him, tears just started slowly running down my face. I kept thinking about long ago in late July last year when this started... and how much this little baby has been through. What a bad last year of life. Sticks and tubes and pain... I just could not stop thinking. They soon brought him back upstairs to his room. Barbara, his nurse, was here and she had assigned Angela to him... (Remember he loves her and she likes him. She is new and never had a patient die and now her first will be one she bonded with...) She did great! We saw her going down the hall once crying but we were all doing that. I got Christy to go back to bed in her chair bed and go to sleep... His fever was 102 when he came back up.. but soon started to rise. They started the new antibiotic and Packed him in ice. In and out, out and in they both went. Finally he started shaking... I thought he had too much ice... and I went out and got Barbara. Being a nurse, I think she knew ASAP what was wrong, A reaction! A bad reaction!... Doctors were called! I woke Christy! The room filled up with people! Barbara.. Thank God for Barbara, he needed Demerol for the reaction. She called the RX downstairs but they did not have a runner to bring it up. She called next door to ICU, they did not have it. She called the next wing.. They had it.. and off she went running. I was starting to panic. His heart was beating at 250... his temp was 105.... His blood pressure was 150 over 100. I moved all the furniture for the crash cart. I tried to stay out of the way and clam Christy. I knew he was going to have a stroke of heart attack. What to do? No papers have been signed yet. What to do? The Demerol worked! Slowly very slowly things were coming down. Doctors started leaving. His doctor this week is Dr. Dunn and we kept seeing her pace back and forth up and down the hall in and out of his room. She finally said he is going to ICU. The doctor that does the reactions came and told them all what to do and how to handle things,since he has to have this or another drug to kill his infection. In a few hours they moved him to pediatric ICU... Fever still around 103 but everything else stable. He looked so little and tired. We all did! The ICU unit is new. $3,000,000 donated by Food Lion. The best of everything, even a flat screen TV... His nurse told Christy she was going to give her time to get settled and take a long shower and she was going to read his file. Christy said that will take you all night. She said she had seen thicker but not so young and in such a short time. He had another small reaction in the night but Demerol took care of it ASAP. Christy said he is starting to open his eyes.. but is all doped up. His ICU nurse told Christy she had never had so many calls from another unit asking about a patient...Christy said they either love or hate us... and the nurse said, she thinks they love us.. Christy said.. Maxie does that to people...! PLEASE PRAY... NO PAIN... PLEASE! Julie (Maxies Grandmother
Posted on: Sun, 23 Mar 2014 21:12:33 +0000
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