The day Gwendolyn was diagnosed with SMA was the worst day in our - TopicsExpress

The day Gwendolyn was diagnosed with SMA was the worst day in our lives. To be told your child will die and there is nothing we can do to stop the disease from progressing left us feeling completely devastated. But, even then, we knew we must carry on. This is the letter we sent to our family and friends: Going through all of this only reminds us how precious and fragile life is and how important it is to celebrate every single moment. >> thegsf.org/blog/detail/spinal-muscular-atrophy-diagnosis/ #SMAawareness

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