The irony is not lost on me that on one of the rare nights my son is asleep early (but not too early) and my homework is done before my last minute deadline that most parents would seize the opportunity to get some rest... Instead, I sit here in the darkness constructing an e-mail that carries so much weight it must be drafted and edited in a Word document. Because in reality, though sometimes my boy does sleep, autism really never does nor do the constant little battles that must be addressed and fought, sometimes via heavily weighted e-mails. The only guideline I have in parenting a child with special needs is my gut. Thats it. And, I have to hope and pray thats good enough to always do right by him. So, I sit here constructing an email that may alter the course of some things in his life and thats scary. But, its my job to make sure his needs are met with minimal sacrifice on his end and if that means having to make some hard choices and send some emails that are going to put me on the naughty list, thats what Ill do. I kinda like coal anyway. I will always make sure he has what he needs and those needs wont be determined by anybody but him...not a company, insurance policy, board, politician, doctor, expert, celebrity, unicorn, whatever. He determines. Thats it. (Though it would be awesome if he determined he needed a unicorn, because...unicorns!) ;) #autism #unicorns #pita #dontmesswithmom
Posted on: Thu, 11 Dec 2014 05:07:03 +0000
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