This is exactly what we want for Awareness Week, below is a letter written to Ryan Tubirdy by a parent of a coeliac child. Well done Erica, lets all do what we can to raise awareness!! Written for Mr Tubs this week. Ryan. Its coeliac awareness week this week. Im a mum of a 5 year old boy who has been diagnosed with coeliac disease last week and a mum of a 10 year old girl going through the the diagnosis process. Since discovering Tadhgs recent diagnosis ive become aware of how uneducated I have been when it comes to this disease. My children have been sick since they were born, unable to thrive, to feel energy, theyve felt pain most days and could not keep up with their relatives and school friends. I feel massive guilt about how I didnt discover coeliac disease sooner. My daughter has had alot of social issues at school and on the road, shes cried herself to sleep many nights because she couldnt understand why she wasnt able to play outside with her friends because she just didnt have the energy, shes now seeing a child psychologist to help her manage her emotions. We bought them both to gp.s and alternative therapists many many times with complaints of pains and not thriving. I feel massive sadness that I didnt know enough about the disease to be able to identify the symptons sooner and thus would eliminate some of the physical and emotional pain my children have had to endure. The diagnosis process is absolute torture, Eabha (ava), has to eat gluten and feel sick and exhausted every day until she has the confirmation by scope. Privately or publically the waiting list is 4months for this procedure. 4months of poisoning. Ive joined a parents of coeliacs face book page, where it is evident parents are feeling unsupported because of the lack of awarness of coeliac disease. It is a confusing and misunderstood disease. The relatives, schools and alot of the general public do not understand the pain and difficulties this disease brings and therefore, as a parent of children with coeliac disease, im at a loss. Im writing this because it is coeliac awareness week this week and I feel if I was more educated about it before I could of made a difference. If this email guides others to become aware of the symtomes and those suffering from the disease and how they can make a difference, there might be a little less pain felt by the families of those with ceoliac disease. Erica.
Posted on: Fri, 16 May 2014 08:32:56 +0000
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